Thursday, April 2, 2015

CHAMPIONS - Children With Additional Disabilities Thinking About Cochlear Implants



In recent years, the number of children in my practice investigating and receiving cochlear implants who have significant disabilities in addition to their deafness has increased substantially. The Champions booklet brings together the collective experience of some experts in the field of both cochlear implantation and children with complex needs. It highlights current knowledge, points to sources of further information and aims to support parents and those working with children, whether in implant teams or not, in giving cochlear implantation full consideration. It also provides Champions Evaluation Profiles to assess these complex children. See below.


Champions Click Here

Research Report to Advanced Bionics
Children with Cochlear Implants: Complex Needs: Complex Outcomes
Click Here

Children With Cochlear Implants and Complex Needs: A Review of Outcome Research and Psychological Practice 

Champions Evaluation Profiles

  Cochlear Implant Assessment: Child Profile
This questionnaire needs to be filled in by all those who have direct contact with the child named below.  Please fill in the sections that are relevant to your knowledge of the child and give as much information as possible about other professionals who are also involved with the child’s care.

Please note that this form is designed to be as comprehensive as possible and therefore not all sections will be appropriate to the child that you are working with.

Date: ______________

Name of Child: ___________________________________         Hospital  Number:____________

Your name:   ___________________________          Title:           ____________________________

How long have you known this child?_____________________________________
Teacher of the Deaf
Name:         ___________________________            Title:           ____________________________
Address:   ________________________________________________________________________
Telephone: __________________________              Email:          ____________________________

How long have you known this child?________How  often do you work with this child?__________

Educational Audiologist
Name:         ____________________________          Title:           ____________________________
Address:    ________________________________________________________________________
Telephone: __________________________              Email:          ____________________________

How long have you known this child?                       _____________________________________

Speech and Language Therapist
Name:         ___________________________            Title:           ____________________________
Address:    ________________________________________________________________________
Telephone: __________________________              Email:          ____________________________

How often do you work with the child?        Length of session?
________________________________________________________________________

MSI Teacher
Name:         ___________________________             Title:           ____________________________
Address:    ________________________________________________________________________
                   ________________________________________________________________________
Telephone: __________________________              Email:          ____________________________

How often do you work with the child?    Length of session?
____________________________________                  

Physiotherapist/Occupational Therapist
Name:         ___________________________     Title:           ____________________________
Address:    ________________________________________________________________________
                   ________________________________________________________________________
Telephone: __________________________        Email:          ____________________________
                                                                                                    
How often do you work with the child?   Length of session?
____________________________________                  


Other
Name:         ___________________________        Title:           ____________________________
Address:    ________________________________________________________________________
                   ________________________________________________________________________
Telephone: __________________________      Email:          ____________________________


Main Day-care Provision (please circle):

At home                       Crèche                                    Childminder

Nursery: LEA / Private                        School: Mainstream / Specialist / Resourced


Please circle as appropriate for the following, giving name and contact telephone number.

1.     Does the child have a special support assistant or intervener?  Yes / No          No. of hours? _____
Name:         ___________________________      Telephone: ____________________________
Address:    ________________________________________________________________________
                   ________________________________________________________________________

2.     Does the child receive portage?        Yes / No


3.     Has an educational psychologist assessed the child?     Yes / No
Name:         ___________________________      Telephone: ____________________________
Address:    ________________________________________________________________________
                   ________________________________________________________________________

4.     Statement of Special Educational Needs (please ring as appropriate)

Not initiated                  Initiated                        Completed                   Review Month: ________________



Vision:

Visual field





Binocular co-ordination
Visual acuity
Colour vision





Contrast sensitivity
Light-darkness adaptation





Hearing:

Awareness of sound- both environmental and elicited







Imitation of sound
Response to sound (how is it manifested?)








Identification of sound


Communication skills:

Which method of communication is used with the child? (Please circle)

Oral/Aural   Total communication        Sign supported English      BSL       Makaton    Picture Symbols

How does the child attempt to get the attention of others?





Does the child initiate interaction or only respond?





How are needs and wants expressed?





How are emotions expressed?




 

Is the child interested in taking part in any form of interaction?






Does the child associate any words, signs or symbols with another person, object or event?

 

What form does the interaction take?





Other Comments

Cognitive skills:

 

Can the child  attend to a task?






Can the child classify: sort or match?
Does the child have awareness of people, objects, events, places?

 





Does child have symbolic understanding?
Does the child demonstrate recognition of people, objects & places?






Does the child display imitation: the ability to copy or turn-take?

Memory: does the child show the ability to predict, store information in the short or longer term?





Curiosity: does child show the ability to explore immediate environment; any awareness of cause and effect or problem solving skills?

Does child show the ability to anticipate events?




Further comments?
Socialisation skills:
Child’s awareness of self and others





Is interaction with adults and children the same – is there a preference?

Form in which interaction takes place



 

Does child display attachments to others?

Environment:
Awareness of different environments?





Does child have preference for particular environment? If so, why?
Response to change?






General development:
Sitting unsupported, standing with support etc.)








Please add any further information that you feel may be helpful to us in assessing this child.

Thank you for taking the time to fill in this questionnaire
____________________________________________________________

References: Cochlear Implants and Complex Needs
  • Lee, Lustig, Sampson, Chinnici, Niparko. Effects of CMV related deafness on pediatric cochlear implant outcomes Otolaryngology, Head and Neck Surgery 133, 900-905 (2005)
  • Filipo, Bosco, Mancini and Ballantyne. Cochlear implants in special cases: Deafness in the presence of disabilities and/or associated problems. Acta Otolaryngology Suppl. 552, 74-80 (2004)
  • "Deafblindness: where do we come from, where are we, and where are we going" Professor Claes Möller (3 April 2008) click here to view the script
  • "Audiology Management of deaf children with additional complex needs" Dr Wendy McCracken (22 May 2007) as part of the Phonak Virtual Conference The lecture slides are available here

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